US OKs first drug for dyskinaesia in Parkinson’s patients

US OKs first drug for dyskinaesia in Parkinson's patients

Parkinson’s disease is a debilitating disorder in which brain cells progressively die causing patients to experience tremors, rigidity, extreme slowness of movement, impaired balance, and difficulties in swallowing and speaking.

Adamas is also testing the drug to treat walking impairment in patients with multiple sclerosis

via US OKs first drug for dyskinaesia in Parkinson’s patients

This article is of interest to anybody with Parkinson’s disease or multiple sclerosis as a new drug has been approved by the FDA.

Adamas is the new drug designed to help people with Parkinson’s who suffer from Dyskinesia. Dyskinesia is involuntary movement also known as tremor it’s most common in Parkinson’s disease. But as many as 80% of people with multiple sclerosis according to the National MS Society suffer from tremors as well.

It’s also being tested for people with multiple sclerosis that have impaired walking.

One thing the cost of this drug is estimated at $14,000 per year which is a lot cheaper than my multiple sclerosis medication Copaxone which is over $7,000 a month. I’ll be checking with my doctor to see if I qualify for this drug as my current tremor medications have not completely eliminated my tremors. Although they are working great for my spasticity.


Understanding how omega-3 dampens inflammatory reactions | EurekAlert! Science News

Supplements beneficial

Autophagy thus changes in macrophages in response to omega-3 fatty acids and specifically inhibits the secretion of inflammatory factors that belong to the interferon response, with CXCL-10 showing the clearest reduction. The results of this study are being published in the journal Autophagy.

These findings indicate that omega-3 fatty acid supplements may be particularly beneficial in patients who have conditions that are driven or aggravated by a strong interferon response and CXCL-10.

Our research group hopes that this one day will benefit patients with different forms of cancer, meningitis, multiple sclerosis, Alzheimer’s disease or jaundice. But we must emphasize that a lot of work remains.

via Understanding how omega-3 dampens inflammatory reactions | EurekAlert! Science News

The information presented here is compelling but I’m still not convinced that a supplement is the best way to go. I’ve tried fish oil supplements in the past and didn’t see any benefit.

On the other hand I found that by eating fish and shrimp my multiple sclerosis symptoms seem to improve. I also see an improvement with the new style eggs that have omega 3.

I think I’ll stick with the diet I do that includes clams, cod, herring, muscles, salmon, shrimp, and tuna. Of course I don’t know how much omega-3 it has but I’ll also continue eating fried catfish and okra.

Keck research focuses on the effects of multiple sclerosis on Hispanic Populations

The USC Keck School of Medicine of USC is looking to find breakthroughs in understanding multiple sclerosis (MS), a disease that disproportionately affects minority groups. Dr. Lilyana Amezcua of the Keck School is leading a research team to increase a scarce database of information concerning the Hispanic population that has long been neglected in scientific literature.

Amezcua said she wants to ensure that the Hispanic population, the minority group most likely to be diagnosed with MS, according to her, will not be ignored as they have been in years past.

“US-born Hispanics tend to get MS at a much younger age compared to whites and compared within other Hispanic groups,” Amezcua said.  “We don’t know why, but that is telling us there is likely an environmental factor more prevalent here.”

via Keck research focuses on the effects of multiple sclerosis on Hispanic Populations | Daily Trojan

Once again this article points out that the myth that MS is a white person’s disease is wrong.

According to the National MS Society Hispanic and Latinos are a fast-growing group developing multiple sclerosis. This article points out Hispanics are more likely to develop multiple sclerosis earlier in life.

It’s interesting that ethnic groups when they develop multiple sclerosis have unique characteristics of the disease based on their race. African Americans as an example are more likely to experience more relapses, suffer more from conditions such as optic-spinal MS and traverse myelitis. This makes me wonder if other ethnic groups such as Arab and Asians have multiple sclerosis issues that are more unique to their race.

Paddlers find the power of dragon boat racing

Paddlers dig deep at dragon-boat race in the Inner Harbour

Roman Matieschyn, who coaches a team made up of people living with multiple sclerosis, the MS Warriors, said paddling allows people to forget their debilitating disease.

Some paddlers, who use wheelchairs or scooters, are lifted into the boat by their teammates.

“But once they are in the boat, they’re a paddler. They don’t have a disease, they’re a paddler. It just provides them that opportunity to just be like everybody else,” said Matieschyn, who lost his wife to MS

via Paddlers find the power of dragon boat racing

Dragon Boat Racing, who would have thought a bunch of people with multiple sclerosis more precisely MS Warriors would be paddling dragon boats.

This is more proof that just because somebody has multiple sclerosis doesn’t mean they can do something.

Way to go MS Warriors high fives.

Jamaica mother with MS aims to inspire others

Lisa Ray, a single mother in Jamaica with multiple sclerosis, has been through many hurdles over the past eight years, but she refused to let them stop her from living a full life.

In 2008, the former Wall Street broker and comedy promoter noticed she was displaying slurred speech, and suffered from dizziness and problems with balance. After doing independent research, she self-diagnosed herself with multiple sclerosis, an unpredictable disease of the central nervous system that disrupts the flow of information within the brain to the body, according to the National Multiple Sclerosis Society.

Ray’s primary care physician dismissed her symptoms as not being serious enough to be a result of the degenerative disease.

via Jamaica mother with MS aims to inspire others • TimesLedger

My story is similar to this article about Lisa Ray but her story is much worse than mine.

Starting around 2003 or 2004 I started getting a tingly feeling and burning sensation in my right foot. It wasn’t constant it was more off than on. I went to my doctor and he order an MRI of my lower spine. Results of the MRI he said were I had arthritis build up on my spine around a nerve and it was pinching it. He told me there was nothing you could do at the time.

About  2005 or 2006 the feeling had gotten worse. A return visit to the doctor resulted in a diagnosis of fibromyalgia. I was given a prescription for Lyrica which after short time I found did not do anything. I called the doctor and was told there was nothing they could do for me, it would have to get worse.

In the summer of 2007 I had the same feeling that was in my right foot was now beginning in my left foot. The tingling in my right foot had I moved up into my right calf muscle. I also had an overwhelming stiffness in my lower back and shoulders as if I had worked out day before. My doctor referred me to a neurologist at that point and he said I needed to have an MRI performed on my entire spine and neck. When the results of the MRI came in the neurologist told me I had a mass on my spine.  He did not know what it was but assumed it was either a collapsed disc or a ruptured disc and that I needed surgery. After they would not schedule my surgery I went to another neurology clinic and they scheduled me to see a surgeon. The neurosurgeon said after looking at my records he couldn’t understand what the neurologist wanted him to operate on. After performing a bunch of physical tests on me he told me that he believed I had multiple sclerosis. He referred me to another neurologist and told them to look at MS for my condition. That neurologist did a brain MRI that revealed a problem. He then ordered a series of blood tests to be performed which came back negative. The next step was a spinal tap and on January 8th 2008 I was diagnosed with multiple sclerosis.

Today thanks to Copaxone the medication I take I don’t have the tingling or burning sensation in my feet. The stiffness is generally controlled most days as well. My walk and balance are off however and I need a walker to get around. I have tremors as well along with speech issues and swallowing issues caused by multiple sclerosis.

My advice to anyone with MS is learn to adapt and then move on.

Deep Brain Stimulation May Treat Multiple Sclerosis Tremors After All

Anywhere from one-quarter to one-half of individuals with multiple sclerosis develop tremors, like those common in Parkinson’s disease, but multiple sclerosis tremors are typically specific to the arms. Multiple sclerosis tremors are incredibly detrimental to the quality of life, as they are often drug-resistant and completely disabling (approximately 10% of multiple sclerosis patients become incapacitated by tremor).

via Deep Brain Stimulation May Treat Multiple Sclerosis Tremors After All – Medical News Bulletin

This is good news for me I fight tremors on a daily basis myself. According to the National MS Society this is a very common problem that people have with multiple sclerosis. This is one of the most difficult symptoms to treat according to doctors. Parkinson’s disease drugs don’t work generally according to many doctors treating multiple sclerosis caused type of tremors.

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