Ultramarathoner’s Discipline Helps Her Outrun MS Symptoms

MS-profile-Shannon-Farar-Griefer-722x406

Not everyone can run 135 miles, from 278 feet below sea level at Death Valley to 8,360 feet at the Mount Whitney trailhead. We’re talking an ultramarathon taking place in mid-July, when blistering and unrelenting temperatures can propel the mercury to 130 degrees F.

The Badwater 135 holds the title of the most demanding running race anywhere on the planet.

While most people without health challenges couldn’t possibly finish it, Shannon Farar-Griefer, who has multiple sclerosis (MS), has completed 7 Badwater races out of an attempted 10. She most recently competed but didn’t finish on July 23, 2018.

She’s also finished a long list of other ultramarathons — any race longer than a marathon, at 26.219 miles — and run so many marathons that they sort of pale in comparison to the big guys.

“You use all your mental tools to run that far,” says Farar-Griefer, 57, of Calabasas, California. “You must get over ‘big walls’ when you have MS and when you race. My motto is, ‘Never, ever give up,’ and I do know other people have challenges much worse than mine.”

https://www.everydayhealth.com/multiple-sclerosis/ultramarathoners-discipline-helps-her-outrun-ms-symptoms/

I can’t imagine running in Death Valley in July, let alone doing it with Multiple Sclerosis. This is both an inspiring and amazing story.

As of October 2016, the National MS Society estimated there were at least 41,358 people living in California with Multiple Sclerosis.

Ultra marathoner runs for his daughter, and to beat back neurological disorder

ST. CHARLES, MO – A St. Charles man faced with a life-changing diagnosis will embark on a challenge that will push his body to the limit. As the sun rises over the Colorado mountains Saturday morning (Aug. 18), Matthew Porter will begin running and will not stop for nearly 30 hours.

For two years, Porter has been training for the Leadville Trail 100, an annual ultramarathon that will take him on trails and dirt roads near Leadville, CO through the heart of the Rocky Mountains.


Three and a half years ago, a doctor ordered an MRI to look into some tension Porter was feeling in his back. That is when the doctor first noticed signs of Multiple Sclerosis.

On a scale from one to ten, Porter says most days his pain is at a two or three. On the bad days, it is closer to a seven or eight. Sometimes he experiences uncontrollable tingling from his fingertips to the back of his skull. Other times, his chest muscles contract intensely into what he says people in the M.S. community call the “M.S. hug.”

https://kplr11.com/2018/08/14/ultra-marathoner-runs-for-his-daughter-and-to-beat-back-neurological-disorder/

Good luck to Matthew Porter who is going to be running in the Leadville 100 Ultramarathon. It will be quite a challenge for him going from elevation of 577 feet in St. Charles, Missouri to an elevation of 10,152 feet in Leadville Colorado. Leadville has the highest elevation of an incorporated city in the United States. Leadville’s elevation is so high that you can’t boil water there.

According to the National MS Society as of October of 2016, there were 14,420 people in Colorado living with Multiple Sclerosis and 11,101 living with the disease in Missouri.

Running man: In less than a year, MS patient goes from barely crawling to running a marathon | Ottawa Citizen

A year ago, the Smiths Falls-area man would fill it with weights for support while he painfully learned to run again after a bone-marrow transplant.

Prior to the life-changing treatment, a devastating multiple sclerosis attack had left him unable even to crawl. He was forced to pull himself around his house with his hands.

Today, Hurdis is training for a marathon, and that is just the beginning. So far, in addition to regular training, he has run 60 kilometres in one go and he is aiming for ultra-marathons and more long-distance running.

 

https://ottawacitizen.com/news/local-news/running-man-in-less-than-a-year-ms-patient-goes-from-barely-crawling-to-running-a-marathon

This is an inspiring story about thriving after being devastated with multiple sclerosis.

Needs & Deeds: Bike ride is part of efforts to stop MS in its tracks

“Bike MS is an experience grounded in camaraderie that brings together cyclists of all levels for one reason — to create a world free of MS,” Linda Bates, president of the National Multiple Sclerosis Society’s South Central chapter, said in a news release. “Funds raised from this event support cutting-edge MS research as well as programs and services for people living with MS in this community.”

Bike MS: Oklahoma Ride is one of nearly 80 rides across the country hosted by the National MS Society. This year, more than 80,000 people are expected to participate in Bike MS nationwide.

 

https://newsok.com/article/5604228/needs-deeds-bike-ride-is-part-of-efforts-to-stop-ms-in-its-tracks

One month to go for Bike MS Oklahoma.

Special thanks to Primal and The Pickle Juice Company.

As of October 2016 according to the National MS Society there were 4344 people living in Oklahoma with multiple sclerosis

Greer Spring Mark Twain National Forest Missouri Jigsaw Puzzle

Greer Spring Missouri

Greer Spring Mark Twain National Forest

Try Jigsaw puzzle

11,101 of the 490,616 Americans that have MS live in Missouri.

Source: National MS Society 10/2016.

MS History – In July of 1993 the FDA approved Betaseron as the first medication to manage Multiple Sclerosis. Thanks to research there are now 15 medications approved to manage MS.

Photo By Kbh3rdOwn work, CC BY 3.0, Link

 

The photo was modified from the original in the following ways:

  • It was reduced in size.
  • It was converted to a jigsaw puzzle.

Use of this photo does not constitute any endorsement or connection to Wipe Out MS by either The National MS Society or the photo creator.

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Fan Quilt comes full circle

When the ticket was drawn two Saturdays ago, Clark was the winner of the quilt and the MS Walk was the winner of an additional $1,423.34 for the 2018 MS Walk, bringing its total to $29,286.34.

http://www.wellsvilledaily.com/news/20180805/strongfan-quilt-comes-full-circlestrong

Very cool idea for a fundraiser for Walk MS. It’s also is a very interesting story about making a quilt that was started 35 years ago.

As of October 2016 the National MS Society, stated there were at least 41,358 living in California with Multiple Sclerosis.

Red Necked Wallaby Des Moines Iowa Jigsaw Puzzle

Red Necked Wallaby Des Moines Iowa Zoo

Red Necked Wallaby

Try Jigsaw puzzle

4,470 of the 490,616 Americans that have MS live in Iowa.

Source: National MS Society 10/2016.

MS Myth MS Affects Everyone The Same – False, no 2 people with Multiple Sclerosis are exactly the same. As an example one person may have numbness in a foot, a second person can have vision issues, a third person may have urinary incontinence, and a fourth person may be paralyzed. Even within a family where there are several members with MS each path is different,

Photo By Grendelkhan – Own work. Also available from my Flickr., CC BY-SA 3.0, Link

 

The photo was modified from the original in the following ways:

  • It was reduced in size.
  • It was converted to a jigsaw puzzle.

Use of this photo does not constitute any endorsement or connection to Wipe Out MS by either The National MS Society or the photo creator.

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