Okie from Muskogee: Sommers finds ways to make others smile | News | muskogeephoenix.com

Devastating disease doesn’t hold her back Sommers recalled noticing that she was losing her balance around 2010. She recalled thinking it was some other disorder.

“After a year and a half of being treated for something else, something told me it was not in my back, but in my brain,” she said. “It was the part that controlled my balance.”

She eventually was diagnosed with multiple sclerosis, a potentially disabling disease of the central nervous system. She said her monthly infusions help her manage her MS.

“Once the damage is done, it can’t be reversed,” she said. “All you can do is stop it from getting worse, which is where I’m at.”

Sommers says she tries to be as active as the disease would allow.

“It’s important I keep moving,” she said. “But there’s a fine line between me keeping moving and overdoing it to where I’m having to chill on the couch the next day.”

 

https://www.muskogeephoenix.com/news/okie-from-muskogee-sommers-finds-ways-to-make-others-smile/article_c0eaced4-9a85-5ce0-91a6-71ecf0a7f9ac.html

This is an amazing story about Miriam Sommer and in spite of having multiple sclerosis she continues to help others.

The Horse Can Walk for Me:’ Battling Multiple Sclerosis on Horseback

And just a few years ago she knew something wasn’t right. “2.5 years ago I stated having a lot of weird symptoms like numbness in half my body. I lost a lot of mobility and couldn’t talk right – couldn’t think right,” says Landris.

Being on the horseback makes her feel like her old self. “It’s one of the things that makes me feel like I used to feel – makes me feel like the same person I was,” says Landris.

Liberty and her long-time friend Denise Rooker are hosting their annual Run Walk or Trot for MS again this year, benefiting MS research at the Brigham and Women’s Hospital.

https://www.9and10news.com/2019/05/01/the-horse-can-walk-for-me-battling-multiple-sclerosis-on-horseback/

This is a touching and inspiring story and how Liberty Landris has multiple sclerosis and her love of her horses.

She’s going to have her own fundraiser and I like the title Walk Run or Trot for MS.

My battle with an Invisible Disease – Los Angeles Sentinel

My story begins February 2008, I was 23, I was a recent college graduate. I was working a highly sought-after public accounting job. I had moved to a city where I worked long hours in a quest to climb the corporate ladder. In early 2008 I had started experiencing random numbness, it went from being one foot to one leg, from one leg to both legs. It felt like my limbs had fallen asleep, but I couldn’t shake the feeling.

One day about a month after first experiencing the numbness, I woke up numb from the neck down. I didn’t trust myself driving, the walk up and down the three flights of stairs to my apartment was daunting and the simple task of getting out of bed became a chore. I went to doctors, but all the doctors saw was someone who looked normal. How could someone who claimed to be numb, walk and talk. Over and over again I was turned away as they said nothing was wrong. In a last-ditch effort for answers I started going to the ER almost every day for a month.

Eventually I met a neurologist who believed something was wrong, she just didn’t know what. Thankfully towards the end, her husband walked in, and he was a specialist neurologist, and he could tell something was wrong. He took a look at me, carried out visual tests and he said, you have to go straight to the hospital. Then after a week in the hospital and many MRIs scans later I left with the diagnosis of multiple sclerosis (MS).

https://lasentinel.net/my-battle-with-an-invisible-disease.html

This is a well-written article; it gives a pretty good idea about how quickly MS can strike without warning.  I will say it’s a must-read article that anybody who doesn’t have MS so they can understand what the person is going through.

Multiple sclerosis is clearly an invisible disease for some which makes it hard for people to understand. Before I started showing signs, the tingling and burning in my feet could not be seen by anybody. I was told it must be a mistake because I couldn’t have a disease.

The article also indicates how difficult it can be to diagnose multiple sclerosis. I went over 5 years with various diagnosis of what was wrong such as a collapsed disc. a pinched nerve, and fibromyalgia, before I was finally diagnosed with MS.

Israeli researchers discover MS drug could help epilepsy patients

Tel Aviv University researchers have discovered that a drug used in the treatment of multiple sclerosis may be adapted to help epilepsy patients.

The development is significant because 30-40 percent of epilepsy patients do not respond to the pharmaceutical treatments available today, particularly children with a rare and severe form of the disorder called Dravet Syndrome, a university statement said on Monday.

https://www.timesofisrael.com/israeli-researchers-discover-ms-drug-could-help-epilepsy-patients/

I’ve said for some time that if we can cure multiple sclerosis we will learn enough to be able to cure other diseases such as epilepsy, Parkinson’s, etc.

In this case it appears a step forward was made with epilepsy by using an MS medication called Aubagio approved by the FDA on September 2012.

Man with MS running the London Marathon hails benefits of exercise while living with incurable condition

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Tom Cutts, 27, will run his first marathon on Sunday to raise funds for Colchester charity MS-UK after being diagnosed with relapsing remitting MS, which affects the nerves in the brain and spinal cord.

Since his diagnosis in October 2017, Mr Cutts has faced symptoms including chronic pain in his face, bowel issues, balance problems, and bouts of depression.

But the former semi-professional footballer, who vowed to run the marathon on the day of his diagnosis, told the Standard running has helped “take his mind off things” over the last two years.

https://www.standard.co.uk/news/london/man-with-ms-running-the-london-marathon-hails-benefits-of-exercise-while-living-with-incurable-a4127601.html

This is an inspiring story of grit and determination to accomplish something with MS. Congratulations Tom, on reaching 162% of your goal.