US OKs first drug for dyskinaesia in Parkinson’s patients

US OKs first drug for dyskinaesia in Parkinson's patients

Parkinson’s disease is a debilitating disorder in which brain cells progressively die causing patients to experience tremors, rigidity, extreme slowness of movement, impaired balance, and difficulties in swallowing and speaking.

Adamas is also testing the drug to treat walking impairment in patients with multiple sclerosis

via US OKs first drug for dyskinaesia in Parkinson’s patients

This article is of interest to anybody with Parkinson’s disease or multiple sclerosis as a new drug has been approved by the FDA.

Adamas is the new drug designed to help people with Parkinson’s who suffer from Dyskinesia. Dyskinesia is involuntary movement also known as tremor it’s most common in Parkinson’s disease. But as many as 80% of people with multiple sclerosis according to the National MS Society suffer from tremors as well.

It’s also being tested for people with multiple sclerosis that have impaired walking.

One thing the cost of this drug is estimated at $14,000 per year which is a lot cheaper than my multiple sclerosis medication Copaxone which is over $7,000 a month. I’ll be checking with my doctor to see if I qualify for this drug as my current tremor medications have not completely eliminated my tremors. Although they are working great for my spasticity.

 

Keck research focuses on the effects of multiple sclerosis on Hispanic Populations

The USC Keck School of Medicine of USC is looking to find breakthroughs in understanding multiple sclerosis (MS), a disease that disproportionately affects minority groups. Dr. Lilyana Amezcua of the Keck School is leading a research team to increase a scarce database of information concerning the Hispanic population that has long been neglected in scientific literature.

Amezcua said she wants to ensure that the Hispanic population, the minority group most likely to be diagnosed with MS, according to her, will not be ignored as they have been in years past.


“US-born Hispanics tend to get MS at a much younger age compared to whites and compared within other Hispanic groups,” Amezcua said.  “We don’t know why, but that is telling us there is likely an environmental factor more prevalent here.”


via Keck research focuses on the effects of multiple sclerosis on Hispanic Populations | Daily Trojan

Once again this article points out that the myth that MS is a white person’s disease is wrong.

According to the National MS Society Hispanic and Latinos are a fast-growing group developing multiple sclerosis. This article points out Hispanics are more likely to develop multiple sclerosis earlier in life.

It’s interesting that ethnic groups when they develop multiple sclerosis have unique characteristics of the disease based on their race. African Americans as an example are more likely to experience more relapses, suffer more from conditions such as optic-spinal MS and traverse myelitis. This makes me wonder if other ethnic groups such as Arab and Asians have multiple sclerosis issues that are more unique to their race.

Paddlers find the power of dragon boat racing

Paddlers dig deep at dragon-boat race in the Inner Harbour

Roman Matieschyn, who coaches a team made up of people living with multiple sclerosis, the MS Warriors, said paddling allows people to forget their debilitating disease.

Some paddlers, who use wheelchairs or scooters, are lifted into the boat by their teammates.

“But once they are in the boat, they’re a paddler. They don’t have a disease, they’re a paddler. It just provides them that opportunity to just be like everybody else,” said Matieschyn, who lost his wife to MS

via Paddlers find the power of dragon boat racing

Dragon Boat Racing, who would have thought a bunch of people with multiple sclerosis more precisely MS Warriors would be paddling dragon boats.

This is more proof that just because somebody has multiple sclerosis doesn’t mean they can do something.

Way to go MS Warriors high fives.

Glacier National Park Montana Jigsaw Puzzle

Dysesthesias is an unusual painful sensation, it may be a burning, prickling, or aching feeling usually on the legs or feet. It can affect the arms and body as well. When the feeling is a constriction around the abdomen or chest it’s known as an MS Hug.  It is caused by nerve damage from multiple sclerosis.

Each person’s path with MS is unique, as a result not everyone with Multiple Sclerosis will have this medical condition.

Multiple Sclerosis (MS) is an unpredictable disease of the central nervous system affecting the brain, optic nerves and spinal cord.

Glacier National Park Montana

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Photo: Glacier National Park Montana  (MT)

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Chapel Rock New York Jigsaw Puzzle

Lhermitte’s Sign is a sudden sharp stabbing or feeling of an electric shock that only lasts seconds when you bend your head forward. It’s due to Multiple Sclerosis damage that begins to block the signal between the brain and spinal cord.

Each person’s path with MS is unique, as a result not everyone with Multiple Sclerosis will have this medical condition.

Multiple Sclerosis (MS) is an unpredictable disease of the central nervous system affecting the brain, optic nerves and spinal cord.

Chapel Rock viewed from the Lakeshore-North Country Trail.

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Photo: Chapel Rock New York (NY)

Photo By: Mathew Timothy Bradley

 

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  • It was converted to a jigsaw puzzle.

Use of this photo does not constitute any endorsement or connection to Wipe Out MS by either The National MS Society or the photo creator.

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Ocoee Scenic Byway Tennessee Jigsaw Puzzle

PBA (Pseudobulbar Affect) Is a neurological condition that causes involuntary episodes of crying, laughing or both. It is caused by brain injury from diseases such as multiple sclerosis. The National MS Society estimates 1 in 10 (10%) with multiple sclerosis will encounter this issue.

Each person’s path with MS is unique, as a result not everyone with Multiple Sclerosis will have this medical condition.

Multiple Sclerosis (MS) is an unpredictable disease of the central nervous system affecting the brain, optic nerves and spinal cord.

Ocoee Scenic Byway

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Photo: Ocoee Scenic Byway Tennessee (TN)

Photo By: J. Knowles USDA

 

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Use of this photo does not constitute any endorsement or connection to Wipe Out MS by either The National MS Society or the photo creator.

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Waterfall On Sandy River Oregon Jigsaw Puzzle

Trigeminal Neuralgia is a sharp stabbing pain in the face that can be confused with a bad toothache. It is caused by damage to the trigeminal nerve, which is a result of Multiple Sclerosis.

Each person’s path with MS is unique, as a result not everyone with Multiple Sclerosis will have this medical condition.

Multiple Sclerosis (MS) is an unpredictable disease of the central nervous system affecting the brain, optic nerves and spinal cord.

Waterfall on Sandy River

 

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Photo: Waterfall On Sandy River Oregon (OR)

Photo By: Sam Beebe/Ecotrust

 

Creative-Commons

The photo was modified from the original in the following ways:

  • It was reduced in size.
  • It was converted to a jigsaw puzzle.

Use of this photo does not constitute any endorsement or connection to Wipe Out MS by either The National MS Society or the photo creator.